Continuous Glucose Monitoring & Nagging
Continuous Glucose Monitoring
I've spent the last week delving into the shady (so much info, so much still lacking) world of continuous glucose monitoring. Imagine my excitement when I stumbled on "LifeAfterDx--The Guardian Chronicles: A internet journal from one of the first T1 Diabetics to use the Guardian RT continuous glucose monitor." What a great read! But disappointingly, the RT (1) is only available in select US cities, (2) is not yet covered by insurance (sheesh, the whole shebang's expensive), and (3) requires the hubby to carry another monitor (he's currently on a pump). He already gets grumpy carrying his regular BG meter with him. So, I'm not even going to suggest this to him for now.
Additional delving leads to the discovery of "Use of the Paradigm 722 System to Improve Glycemic Control in Adult and Adolescent Subjects With Type 1 Diabetes". The 722 eliminates the extra monitor because it's integrated into the pump... And clinical trials are usually free to participants... And there's a recruiting site 3 miles away from us!
I excitedly email hubby the link. When I get home, his reaction: "I think I want to wait because it's not exactly what I want." What he wants, of course, is a pump which will automatically adjust the insulin delivery based on his BG. I want to scream. But I just look angry and convince him to call them.
...The next day, I call him from work to nag him again to call them. Which he does. But another disappointment - this site is only recruiting 12-17 year olds.
*A note on "nagging": Perpetuating the stereotypical wife-as-a-nagging-shrew? Yes, but damn the man, I have to force him more often than not to take care of himself:
Me: Go see the doctor for that lung-expelling cough you've had for the last 2 months.
Him: What can they do? It's getting better anyways.
Me: You're low. Can you check your sugar or drink some juice?
Him: I'm not low.
(repeat that last exchange about 5 times then go to the next exchange:)
Me (He's obviously low. His BG must be in the 30's): Here, drink some juice.
Him: I'm not low. No!
(repeat that about 6 times. What do I do now? Wait until he passes out to stick some glucagon into him?)
Ok, so it's gotten slightly better lately. He'll actually go check his BG or drink juice when I give it to him. We're still working on the driving when his BG is only in the 50's:
Me: Let me drive, you're still very low.
Him: But I'm totally in control.
Me: You think you're in control, but you're still very low. Let me drive.
(repeat last exchange 6 times). Meanwhile, I'm getting angry, he's getting angry.
It must be all about control
He was diagnosed when he was 20, in the prime of his wild oats sowing. When I met him, he was 33 and still wildly out of control (his BG regulation, I mean). He was adamant about not letting diabetics control or hamper him
My arrival into the picture coincided with better regulation because I was nagging him. So when he fights me helping him with his regulation, I suppose he's fighting: (1) handing more control to me, (2) admitting that he does not have complete control over himself, and (3) admitting that the diabetes does affect his life. #3 is a strange one, considering the obvious impacts on his everyday life, but denial will take you a long way. And after 13 years of marriage, I know how stubbornly he can deny...
I try to be sympathetic, I really do. But when it's 3am, and I'm getting up for the 3rd time that night (toddler nightmare, baby nursing, husband nosediving into a hypo), and he doesn't want to drink/eat anything for his hypo, I do get angry at him. Then I feel guilty, because he didn't ask for it, did he? And he's so low, he's totally out of his mind, so how can I expect him to be rational?